Last Saturday, I got a chance to get out and enjoy the fresh crisp air in Atlanta, Georgia. I had planned an outing to visit Perimeter Mall to support the release of new brand, Fenty Beauty by Rihanna Fenty! I saw online posts and testimonials from a young lady with albinism and watched several YouTube … Read more
Today as I prepare for bed, I noticed that i started to recall different experiences from my past, which have not made me feel good. It seems that negative talk and thoughts come so easy, we may not realize that we are doing it. Sometime we cant take these things back and they can be … Read more
We are more than the superficial characteristics of our person, but everywhere we look someone is finding a way to bring attention to things that trouble them and become a leader in their own right, by being he solution to their issue. (in theory it sounds good…. but is that what’s happening?) This is wonderful … Read more
Well, The Albinism Alliance Group is soaring to new heights with the continuation of our new interactive web-mag! I am super excited about many of the updates and the out pour of support from friends and family, helping to get the word out. TAAG just celebrated it’s twelfth anniversary in March of 2015. We also … Read more
Oculocutaneous albinism type 2 (OCA2) is characterized by hypopigmentation of the skin and hair and the characteristic ocular changes found in all types of albinism, including nystagmus; reduced iris pigment with iris translucency; reduced retinal pigment with visualization of the choroidal blood vessels on ophthalmoscopic examination; foveal hypoplasia associated with reduction in visual acuity; and misrouting … Read more
Working Together in the Albinism Community “celebrating the beauty of albinism” The publication is envisioned to bring a positive message from the AB Community to the World. There are so many people that have a misconception of what it means to have albinism and what it is to be a “hurt person”, with albinism. I … Read more
The AB Experience “celebrating the beauty of albinism” This concept has been in the works since 2005 and we have been working with members of The Albinism Alliance Group to make “the ab experience” the official publication of the albinism community. It’s not just something to take lightly and we need your input to make … Read more