I’m truly dismayed to really see so many persons with Albinism, on such repelling ends of the spectrum; when there is truly a middle ground. Either people are shouting I’m confident to the world or they only share the perceived reward of overcoming. I guess material assets or your annual earnings statement, should represent confidence? … Read more
Last Saturday, I got a chance to get out and enjoy the fresh crisp air in Atlanta, Georgia. I had planned an outing to visit Perimeter Mall to support the release of new brand, Fenty Beauty by Rihanna Fenty! I saw online posts and testimonials from a young lady with albinism and watched several YouTube … Read more
Today as I prepare for bed, I noticed that i started to recall different experiences from my past, which have not made me feel good. It seems that negative talk and thoughts come so easy, we may not realize that we are doing it. Sometime we cant take these things back and they can be … Read more
Well, The Albinism Alliance Group is soaring to new heights with the continuation of our new interactive web-mag! I am super excited about many of the updates and the out pour of support from friends and family, helping to get the word out. TAAG just celebrated it’s twelfth anniversary in March of 2015. We also … Read more
Individuals with all variations of OCA1 have white or nearly white scalp hair, brows, and lashes; white skin; and blue irides with extensive transillumination at birth. The presence of white scalp hair at birth should not be the exclusive clinical criterion for OCA1 because some persons with OCA2 may seem exceedingly fair in the first … Read more
In 2014 The Albinism Alliance Group is working on our official publication “the ab-experience”, so that we may give parents of children with albinism an outlet to observed the AB Community and positive adults with albinism in the most favorable light! We are featuring members of the community who want to be part of a … Read more
Working Together in the Albinism Community “celebrating the beauty of albinism” The publication is envisioned to bring a positive message from the AB Community to the World. There are so many people that have a misconception of what it means to have albinism and what it is to be a “hurt person”, with albinism. I … Read more
Print Magazine Idea Transitions to Functional Web-Mag This webmag has been in the works for sometime and was suggested by The Albinism Alliance Groups member and supporter, Charles O. Parks in 2009. Loads of feedback was taking in just to get to this point. However, this will truly be the first of its kind, in … Read more
The AB Experience “celebrating the beauty of albinism” This concept has been in the works since 2005 and we have been working with members of The Albinism Alliance Group to make “the ab experience” the official publication of the albinism community. It’s not just something to take lightly and we need your input to make … Read more