Well, The Albinism Alliance Group is soaring to new heights with the continuation of our new interactive web-mag! I am super excited about many of the updates and the out pour of support from friends and family, helping to get the word out. TAAG just celebrated it’s twelfth anniversary in March of 2015. We also … Read more
Oculocutaneous Albinism Type 1 Synonym: OCA1. Includes: Oculocutaneous Albinism Type 1A (OCA1A), Oculocutaneous Albinism Type 1B (OCA1B) Characteristics. Oculocutaneous albinism type 1 (OCA1) is characterized by hypopigmentation of the skin and hair and the distinctive ocular changes found in all types of albinism, including: nystagmus; reduced iris pigment with iris translucency; reduced retinal pigment with … Read more
Individuals with all variations of OCA1 have white or nearly white scalp hair, brows, and lashes; white skin; and blue irides with extensive transillumination at birth. The presence of white scalp hair at birth should not be the exclusive clinical criterion for OCA1 because some persons with OCA2 may seem exceedingly fair in the first … Read more
Working Together in the Albinism Community “celebrating the beauty of albinism” The publication is envisioned to bring a positive message from the AB Community to the World. There are so many people that have a misconception of what it means to have albinism and what it is to be a “hurt person”, with albinism. I … Read more
Print Magazine Idea Transitions to Functional Web-Mag This webmag has been in the works for sometime and was suggested by The Albinism Alliance Groups member and supporter, Charles O. Parks in 2009. Loads of feedback was taking in just to get to this point. However, this will truly be the first of its kind, in … Read more