Greetings For 2023

For 20 years I’ve been active in my community and beyond as a mentor, leader and creator for social advocacy content for the albinism (AB) community. With the support of friends, family, and members of The Albinism Alliance Group (TAAG) I’ve come to you with a change to our original concept for “theExperience” Magazine, back in 2016. It’s was not so much a change, as it is an addition to delivery formats. At that time I had decided to feature a webmag and potentially a biannual print publication. In 2020 the sight needed to evolve again. With so many new norms the resulted in the the lost of many lives during the COVID-19 Pandemic; An audio podcast and web content featured on this site were referred to as a blog.

I am dedicated to bringing interesting content and making a difference, everywhere. However, unexpected health issues with kidney failure has delayed delivery of content, The AB Experience. Fast forward to present day, 2023; Complications with clearance with Peritoneal Dialysis (PD) created a toxicity in my kidneys, that nearly killed me. Through faith and prayer I’m entering a recovery, with a positive mindset.

I have chosen to share my experience publicly because in the past it was something I would have Never considered due to the personal nature of things. In the wake of how things seemed to develop multiple obstacles, I wanted to be a woman if my word. I had to walk in the light of belief of sharing experiences to celebrate the true Beauty of Albinism .

Previously I shared my work from a professional and advocacy direction, but felt I protected my personal life by ONLY mentioning the positives. I honestly felt that NOT sharing my trails helped keep me from bringing darkness over other peoples positives. So, I chose to push people away… rather than invite them in, where I stand.

Breaking my silence, even though it may have been my final hour … allowed people who learned of my struggles to learn more about me, uplift me in prayer and this helped renew my faith. I received so much positive feedback that I was able to pull through very dyer circumstances. Since Feb. 6, 2023 I have faced and continue to manage changes in my life, associated with new diagnosis of Congestive Heart Failure.

My day to day life, requires tasks such as attending hemodialysis three times per week, using a walker or cane to support balance when im on my feet and oxygen to remove the stress on my heart when active. It’s an adjustment to determine if my heart will get stronger, I can use a pace maker beyond 90 days or if I become a double transplant patient. Definitely a lot to take in, but if we want to live some times we have to do more than just say it. I’ll keep working to get qualified for the kidney transplant registry and prayerfully things will improve for the additional issues. Thank you for your prayers, encouraging words and support.

Sincerely

Ms.Rae Lowery CEO

Creator and Editor the ab-expereince