I’m truly dismayed to really see so many persons with Albinism, on such repelling ends of the spectrum; when there is truly a middle ground. Either people are shouting I’m confident to the world or they only share the perceived reward of overcoming. I guess material assets or your annual earnings statement, should represent confidence? … Read more
Everyday isn’t bliss and all memories are not happy ones, but we must find an outlet to keep us grounded so that we can bounce back during the trying times. Everywhere I look online I’m reading posts from friends with #albinism referencing either they are feeling depressed, that depression is grabbing them or that they … Read more
Last Saturday, I got a chance to get out and enjoy the fresh crisp air in Atlanta, Georgia. I had planned an outing to visit Perimeter Mall to support the release of new brand, Fenty Beauty by Rihanna Fenty! I saw online posts and testimonials from a young lady with albinism and watched several YouTube … Read more
Hope all of you are well out there in computer land. It’ s been a minute since I wrote a post for AB Experience and this will be the first for our technology category. Recently, I have used Dropbox and WeTransfer for all my large file transmittal. After having so many issue running out of … Read more
We are more than the superficial characteristics of our person, but everywhere we look someone is finding a way to bring attention to things that trouble them and become a leader in their own right, by being he solution to their issue. (in theory it sounds good…. but is that what’s happening?) This is wonderful … Read more
Well, The Albinism Alliance Group is soaring to new heights with the continuation of our new interactive web-mag! I am super excited about many of the updates and the out pour of support from friends and family, helping to get the word out. TAAG just celebrated it’s twelfth anniversary in March of 2015. We also … Read more
Oculocutaneous Albinism Type 1 Synonym: OCA1. Includes: Oculocutaneous Albinism Type 1A (OCA1A), Oculocutaneous Albinism Type 1B (OCA1B) Characteristics. Oculocutaneous albinism type 1 (OCA1) is characterized by hypopigmentation of the skin and hair and the distinctive ocular changes found in all types of albinism, including: nystagmus; reduced iris pigment with iris translucency; reduced retinal pigment with … Read more
Individuals with all variations of OCA1 have white or nearly white scalp hair, brows, and lashes; white skin; and blue irides with extensive transillumination at birth. The presence of white scalp hair at birth should not be the exclusive clinical criterion for OCA1 because some persons with OCA2 may seem exceedingly fair in the first … Read more
Oculocutaneous albinism type 2 (OCA2) is characterized by hypopigmentation of the skin and hair and the characteristic ocular changes found in all types of albinism, including nystagmus; reduced iris pigment with iris translucency; reduced retinal pigment with visualization of the choroidal blood vessels on ophthalmoscopic examination; foveal hypoplasia associated with reduction in visual acuity; and misrouting … Read more
In 2014 The Albinism Alliance Group is working on our official publication “the ab-experience”, so that we may give parents of children with albinism an outlet to observed the AB Community and positive adults with albinism in the most favorable light! We are featuring members of the community who want to be part of a … Read more