Albinism

According to the World Health Organization (WHO), factors in a person’s environment that, through their absence or presence, limit functioning and create disability. While albinism alone may not be a disability, “low vision” with albinism is a physical disability. Before I begin, I am glad to give mention to Mr.Continue Reading

  Getting Through Trying Times As I take a moment to reflect on plans for 2020’s conference notes for “The Inclusion Initiative”, I am reminded that we are a midst a global pandemic.  It’s impossible to know where we will be when planning events so far out. However, a planContinue Reading

Everyday we here stories of police brutality. Black men and women dying senselessly. Each time justified by past criminal histories and demonized by talk of drug use or some other stigma. This idea of extermination appeals to non blacks because the narrative remains the same as it has for hundredsContinue Reading

NOWTHIS Media IAAD 2019

Resilience with Purpose NOWTHIS was very on point with the quality of the video produced to celebrate albinism awareness day, for a billboard in New York’s Time Square on June 13, 2019. Content was directed at human rights which is the initial message for creating International Albinism Awareness Day. IContinue Reading

Beating Depression with Albinism

Everyday isn’t bliss and all memories are not happy ones, but we must find an outlet to keep us grounded so that we can bounce back during the trying times. Everywhere I look online I’m reading posts from friends with #albinism referencing either they are feeling depressed, that depression isContinue Reading

Well, The Albinism Alliance Group is soaring to new heights with the continuation of our new interactive web-mag! I am super excited about many of the updates and the out pour of support from friends and family, helping to get the word out. TAAG just celebrated it’s twelfth anniversary inContinue Reading

Oculocutaneous Albinism Type 1 Synonym: OCA1. Includes: Oculocutaneous Albinism Type 1A (OCA1A), Oculocutaneous Albinism Type 1B (OCA1B)   Characteristics. Oculocutaneous albinism type 1 (OCA1) is characterized by hypopigmentation of the skin and hair and the distinctive ocular changes found in all types of albinism, including: nystagmus; reduced iris pigment with irisContinue Reading

Individuals with all variations of OCA1 have white or nearly white scalp hair, brows, and lashes; white skin; and blue irides with extensive transillumination at birth. The presence of white scalp hair at birth should not be the exclusive clinical criterion for OCA1 because some persons with OCA2 may seemContinue Reading

Oculocutaneous albinism type 2 (OCA2) is characterized by hypopigmentation of the skin and hair and the characteristic ocular changes found in all types of albinism, including nystagmus; reduced iris pigment with iris translucency; reduced retinal pigment with visualization of the choroidal blood vessels on ophthalmoscopic examination; foveal hypoplasia associated withContinue Reading

Print Magazine Idea Transitions to Functional Web-Mag This webmag has been in the works for sometime and was suggested by The Albinism Alliance Groups member and supporter, Charles O. Parks in 2009. Loads of feedback was taking in just to get to this point.  However, this will truly be theContinue Reading